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Off to the races, I’m goin’ places..

This is my current earworm as I count the minutes till I can leave for my meeting tonight. In my head though, I’m saying all those lyrics sarcastically because nothing is “so great” right now.

 

I went out for a while this afternoon, by myself just to get the skin crawly, cooped up, antsy feeling away and it worked.. for a while. Being back at home the antsy feeling came back. I think it’s cause I am still pissed at Husband.. we got a lot of stuff unresolved at the moment but even though it has me pissed and antsy I don’t quite have the energy to invest in working it out. Not right now anyway. Mostly because I know he’s never going to respond the way I need him to. And I’m not 100% sure he isn’t lying to me right now about his own medical crap which makes me question every statement he makes and feel furious at every accusation he utters. So it all remains unspoken. It’s tense but functional. Notice I didn’t say healthy.

Husband needs triple bypass surgery. His dire health situation is pretty much the only thing that’s keeping me from walking or “rolling” out on his angry, controlling ass with Son.. because God forbid he dies.. I don’t want to be what came between Son and his dad at the end of his dad’s life. But his necessary surgery had been postponed three times now and I’m halfway convinced that Husband is sabotaging his surgical dates on purpose and telling me the hospital is bumping him. I mean, what freaking hospital moves a triple bypass 3 times?!

So I am waiting for his next surgical date and if somehow, magically, the operation doesn’t happen AGAIN, I will be calling his doctors, his visiting nurses, his whoever, to see if I have any rights or abilities to get him medically compliant. Son is off to camp in the Berkshires for a week 7/16. Hubs is supposed to have his operation 7/18. Right now, having the house to myself for at least 5 days both thrills and terrifies me.

Continuing to binge Nurse Jackie and wonder what it would be like to not be with Hubs. We’ve been married for 16 years. I wonder what it would be like for either one of us to not be together.

Attitude of gratitude: I am glad for the meeting I’m going to tonight. This one is like home.

And since I started with Demi Lovato, I’ll finish with her as well. this is her in her brief but adorable role on Glee when she was with Santana.

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I can feel inside me, the sickness is rising…

I am coming apart at the seams. Husband is basically of the attitude in the above video. He sees me as weak and selfish. When I got active with my recovery in the past I was much more mobile and independent so whenever I felt like I couldn’t stand it anymore I could go to a meeting. I was involved in service projects and was able to stave off the worst of the cravings. Now that I am in the wheelchair full time it’s so much more difficult. Technically I can still drive but because we don’t have a wheelchair van I need help to get my chair or scooter in and out of the car which either means having someone take me or someone to put me and the chair in the car then someone at the other end to get my chair out and help me in it. That doesn’t really work when going to a meeting I haven’t been to before. So  I am stuck.

I’ve been rewatching Nurse Jackie from the beginning again. I find myself even more fascinated by Eddie and Jackie. Feeling as guilty, angry and fucked up as I do right now, I almost wish I had an Eddie for a husband instead of a Kevin. Someone who would enable me when I needed to be messed up instead of hating me for it. I know that is beyond wrong. I know I am beyond a failure as a wife, mother, sister and friend. A garbage person. And obviously struggling with self loathing and despair. My head is fucked.

Day 1 of 90.. again.

 

Sorry about the glare on the screen. It was the only clip I could find of the scene showing how I feel being back at the beginning. I need to do what works. I need to get myself right, to be able to take care of me and my family. Before, when I was actually in recovery instead of cheating and sneaking every possible way  could, writing here helped. So I am TRYING for 90 meetings in as many days as well as 90 posts. I am not going to beat myself up if life gets in the way but I am going to keep trying.

Husband is still being a total prick about this. He is being his exceedingly unforgiving, uncompassionate self. He’s saying that I stabbed our family in the back, by relapsing. As if I deliberately chose to hurt him and son by giving in. I asked him repeatedly to talk to me and he’s refused.

So I am working on me. I am trying to have compassion for him as he is very sick right now and facing major surgery.

Daughter is struggling now, as an adult, and it hurts me to know that part of why she struggles is because I didn’t do more to keep Husband’s controlling, angry behavior from wrecking her childhood. I thought things were different after the separation and the counseling and they were but lately we’ve been back to the bad old days. I’m using secretly and he is being a controlling, narcissistic judgemental asswipe.

Daughter is safe now of course, she’s been away from him for years but I worry about Son. He worships his dad and I don’t want him to turn out like Husband.

We are going to look at an apartment tomorrow.

I went back to a meeting today with PCA. She was amazing and there for me as always. She let me vent and cry and told me the truth about what I had to say. I planned to speak and raised my hand but then proceeded to choke and cry and barely get out the words, “I’m back at the beginning, thank you for being here.” It was embarrassing  but I know that they have all seen it before. The good thing about good meetings.. when you can know nobody in that room but know you’re with your people.

I got home and opened a package with 400 pills in it. Oops! I had ordered them before I stopped. I gave them directly to Husband bottle unopened. I don’t know if that made him more angry or distrustful of me but he’s already not speaking to me so how much worse could it really get?

So.. hmm.. Oh! Attitude of gratitude. That always helps me get out of my own head.  Today I am most thankful for PCA. She has been so intuitive with me as always. She can tell what I need when I need it and is always there to give it.

How I feel about Hubs at the moment:

Good recovery songs:

Does this stigma ever wash off?

I admit I fucked up. I did. I found a loophole in my tightly regimented meds and was abusing it. Actually, I was abusing some otc meds which potentiate my meds that are kept in a lockbox and distributed to me by a nurse 3 times per week. I burned through a new bottle of pills without realizing it, panicked and ordered more before hubs could realize it and then today, before they came, he needed a dose of one of the meds. So even though I’ve been in recovery for 4 years he is back to square one with trusting me.

Now he just stormed out of the house with our son at 10 pm at night refusing to tell me where he was going. And to make matters worse, I think he may use this as an excuse to yet again postpone his much needed triple bypass surgery! More on that later..

I know this post is all over the place. I am posting it because blogging helped me get my shit together before and I’m hoping to do it again.

 

Terror of wish fulfillment and fear of self sabotage..

I have a date for double knee replacement.

This is exactly what I wanted.. what I’ve needed for over 10 years now and have been actively striving and hoping for since a particularly terrible Christmas vacation in VA, Christmas 2014, just before I got my wheelchair, and I was moving so poorly that I only left the hotel room twice.. the whole trip.. and as I lay in the the uncomfortable bed I swore that no matter how scary it got I had to do something to make things different..

But I’m complicated.. so hearing all the risks that go along with the operation, some of the scariest being that I’ll need a blood transfusion after, that he’ll need to shorten my legs to compensate for the contractures because if he doesn’t the nerves won’t be long enough and my legs will get gangrenous and maybe even need to be amputated, that I will need to be rigorous with extremely painful stretching and PT or I could end up right back where I started 6 months post op as the contractures are going to want to reassert themselves immediately postop.. etc.. scary af.. but what’s the alternative?

Choosing at just turned 40 years old that I want to stay trapped and increasingly dependent on an at turns indifferent or disdainfully angry spouse?  After my fall in the spring I spent about 45 days inpatient rehab, and Husband often sneers at me about how much I loved it there because I was “waited on hand and foot”.

Is it so wrong to want 3 meals a day? Help with showers? Assurance that I would have my meds on time every day, and never have to wait because Husband didn’t see pain relief or whatever other med as important as I felt it? Added bonus, I did PT 5 days a week there, did therapy for my psych stuff weekly, could have visitors with no need to race around cleaning up or making excuses cause I was too exhausted, round the clock nurses meant that I couldn’t take too much or little of any med and that was an indescribable relief as that is always a struggle for me in times of stress..

I am scared.. but now Husband.. after stressing how important this is for me and for us is all fixating on the risks and not even willing to have the smallest crumb of faith that this might change our lives for the better..

Part of me wonders if he’s acting like this because he’s afraid of me being healthier, more mobile, less dependent on him.. anytime weight loss, fixing my teeth and now my knees actually seems like it might happen he always gets all, “what about this scary thing or that possible complication?” “What about if you screw it up by falling into your old ways?”

Always playing on my worst fears.. always pointing out the things I hate most about myself..

Also feeling like a crappy mom today cause I woke up anxious and headache-y which really makes me want to be by myself, and for some reason Son was clingier today.. I love my kids.. one of the only times anymore I feel like I have a purpose is being a mom so when doing mom stuff feels like something I wanna get away from it kinda makes me hate myself a little..

All of these unknowns, pain and complicated emotion make me reach for something, anything to numb.. to feel other.. and I’m fresh  out of stuff like that..

I’ll end with a couple of songs..

For my kids.. full grown Daughter and growing all too fast Son..

 

and to Husband..and myself..

 

new start to the 90 in 90 count… thanks for reading my bubbled corruptions.. for being down with my sickness.. ❤

 

 

Sick of it, sick of it, absolutely sick of it..

This post comes with a bit of a soundtrack.. I’ve been trying to get a grip.. to get enough of a hold on my thoughts so I can make words appear in a post so I can get some of this burden out of my head.. to try to bubble some of my own corruption.. (that’s a Steven Universe reference).. Son is into them and now I’ve recently gotten a little obsessed with them as well.

Anyway, I’ve wanted to start a 90 in 90 again, which is my own version of therapy, 90 posts in 90 days.. I did it before and it was quite therapeutic, but even though I know writing helps and I have a ton I could be writing about it’s been difficult to make myself start moving and stay moving.. but back to the music I started talking about.

First is a song I always liked that’s kind of background to this clip I’ve always loved in Skins. It’s part of the love story between Chris and Jal and though I searched for the song by itself I couldn’t find it. You don’t really need to know anything about the story to hear the song that’s been running in the back of my head as crap in my own life just keeps piling up and getting heavier though I’d totally recommend the series if you’re into watching characters with lives so effed up you feel better about your own garbage life

I’m really struggling. Sometimes it feels like drowning or being trapped under something heavy. My  marriage, my finances, my health  (the order of these issues’ importance varies given the day) my constant desire due to all of these things to do something, or take something, ANYTHING, just to feel something other than what I feel.. it’s overwhelming.

Husband and I are in an ugly place with each other. It’s that point where we’re both kind of looking at each other wondering what we ever saw in the other one.. he’s putting up walls and every communication from him to me is some sort of criticism of my everyday actions… I respond to said walls by becoming needier and whinier and also inadvertently doing more of whatever is pissing him off  even as I try not to.

 

 

 

 

You get it.. Basically, we’re both crazy and we’ve been together long enough that it feels like we’ve run out of new ways to handle old problems.

So I’m hurting.  And I hate being at odds with him because I could really use some support right now. On Tuesday, I’ll be going in to Boston to consult about the double knee replacement that I need to get me up out of this wheelchair. My anxiety on this topic is tremendous and I can’t talk to him about it when he’s being SUCH a douchebag all the time!

That’s all for now.. I had planned to delve into more if what’s in my head but I never really know how things are going to go when I actually start posting.. I wanted to say when I go to put pen to paper, but writing hardly ever involves pens and paper anymore.. somehow saying putting fingers to keyboard doesn’t sound the same..

So I don’t leave on too negative a note, here’s a song for anyone whose in their own crappy space right now or for any of the sad or angry or self loathing feelings any of the other songs may have brought up..

 

More later.. I plan to try and manage a productive family day out in about 3 hours on no sleep.. if that’s not fodder for the keyboard nothing is.. 😀 … thanks for reading!

 

 

It’s been way too long…

When I got out of the nursing home in April I applied at this program called SHARE for a laptop. I was told laptop would have the latest version of Dragon, and I will sure once I had it I would have no problem blogging every day.

But I finally have laptop, all I seem to be doing, is getting obsessed with more Facebook games. I miserable right now… I’m in the midst of a flare my feet and legs are so horribly swollen… I really should be on bed rest to avoid cellulitis.

I know that writing is a useful tool for me when my body and mind are a painful prison. Sometimes when you are really low the hardest thing is to look up.

I know when I’m messed up like this, writing is crucial. I think I may need to do a 90 in 90 like I did when I first started. I need to get my head right. I need to go back to the beginning.