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Off to the races, I’m goin’ places..

This is my current earworm as I count the minutes till I can leave for my meeting tonight. In my head though, I’m saying all those lyrics sarcastically because nothing is “so great” right now.

 

I went out for a while this afternoon, by myself just to get the skin crawly, cooped up, antsy feeling away and it worked.. for a while. Being back at home the antsy feeling came back. I think it’s cause I am still pissed at Husband.. we got a lot of stuff unresolved at the moment but even though it has me pissed and antsy I don’t quite have the energy to invest in working it out. Not right now anyway. Mostly because I know he’s never going to respond the way I need him to. And I’m not 100% sure he isn’t lying to me right now about his own medical crap which makes me question every statement he makes and feel furious at every accusation he utters. So it all remains unspoken. It’s tense but functional. Notice I didn’t say healthy.

Husband needs triple bypass surgery. His dire health situation is pretty much the only thing that’s keeping me from walking or “rolling” out on his angry, controlling ass with Son.. because God forbid he dies.. I don’t want to be what came between Son and his dad at the end of his dad’s life. But his necessary surgery had been postponed three times now and I’m halfway convinced that Husband is sabotaging his surgical dates on purpose and telling me the hospital is bumping him. I mean, what freaking hospital moves a triple bypass 3 times?!

So I am waiting for his next surgical date and if somehow, magically, the operation doesn’t happen AGAIN, I will be calling his doctors, his visiting nurses, his whoever, to see if I have any rights or abilities to get him medically compliant. Son is off to camp in the Berkshires for a week 7/16. Hubs is supposed to have his operation 7/18. Right now, having the house to myself for at least 5 days both thrills and terrifies me.

Continuing to binge Nurse Jackie and wonder what it would be like to not be with Hubs. We’ve been married for 16 years. I wonder what it would be like for either one of us to not be together.

Attitude of gratitude: I am glad for the meeting I’m going to tonight. This one is like home.

And since I started with Demi Lovato, I’ll finish with her as well. this is her in her brief but adorable role on Glee when she was with Santana.

Terror of wish fulfillment and fear of self sabotage..

I have a date for double knee replacement.

This is exactly what I wanted.. what I’ve needed for over 10 years now and have been actively striving and hoping for since a particularly terrible Christmas vacation in VA, Christmas 2014, just before I got my wheelchair, and I was moving so poorly that I only left the hotel room twice.. the whole trip.. and as I lay in the the uncomfortable bed I swore that no matter how scary it got I had to do something to make things different..

But I’m complicated.. so hearing all the risks that go along with the operation, some of the scariest being that I’ll need a blood transfusion after, that he’ll need to shorten my legs to compensate for the contractures because if he doesn’t the nerves won’t be long enough and my legs will get gangrenous and maybe even need to be amputated, that I will need to be rigorous with extremely painful stretching and PT or I could end up right back where I started 6 months post op as the contractures are going to want to reassert themselves immediately postop.. etc.. scary af.. but what’s the alternative?

Choosing at just turned 40 years old that I want to stay trapped and increasingly dependent on an at turns indifferent or disdainfully angry spouse?  After my fall in the spring I spent about 45 days inpatient rehab, and Husband often sneers at me about how much I loved it there because I was “waited on hand and foot”.

Is it so wrong to want 3 meals a day? Help with showers? Assurance that I would have my meds on time every day, and never have to wait because Husband didn’t see pain relief or whatever other med as important as I felt it? Added bonus, I did PT 5 days a week there, did therapy for my psych stuff weekly, could have visitors with no need to race around cleaning up or making excuses cause I was too exhausted, round the clock nurses meant that I couldn’t take too much or little of any med and that was an indescribable relief as that is always a struggle for me in times of stress..

I am scared.. but now Husband.. after stressing how important this is for me and for us is all fixating on the risks and not even willing to have the smallest crumb of faith that this might change our lives for the better..

Part of me wonders if he’s acting like this because he’s afraid of me being healthier, more mobile, less dependent on him.. anytime weight loss, fixing my teeth and now my knees actually seems like it might happen he always gets all, “what about this scary thing or that possible complication?” “What about if you screw it up by falling into your old ways?”

Always playing on my worst fears.. always pointing out the things I hate most about myself..

Also feeling like a crappy mom today cause I woke up anxious and headache-y which really makes me want to be by myself, and for some reason Son was clingier today.. I love my kids.. one of the only times anymore I feel like I have a purpose is being a mom so when doing mom stuff feels like something I wanna get away from it kinda makes me hate myself a little..

All of these unknowns, pain and complicated emotion make me reach for something, anything to numb.. to feel other.. and I’m fresh  out of stuff like that..

I’ll end with a couple of songs..

For my kids.. full grown Daughter and growing all too fast Son..

 

and to Husband..and myself..

 

new start to the 90 in 90 count… thanks for reading my bubbled corruptions.. for being down with my sickness.. ❤