Tag Archive | rheumatoid

Maria Johnson’s Personal Page for SHARE FUN WALK 2016

I hardly ever use this blog as a platform for sales or fundraising. I suck at sales even when I believe in the product and I’m hardly ever involved in fundraisers either.

However, SHARE at UmassDartmouth is a wonderful program that I truly believe in. They have provided life changing technology, DME and other assistive devices to the disabled community since 1981.

They’ve provided me personally with an accessible laptop and other helpful household items. In return, I will be doing the FUN “WALK”. (I added those quotes as I am obviously completing the route using my scooter.. I’m told I’m not the only wheelchair user participating) I have a goal of $100 in pledges. Donations can be made using the link below. Every little bit helps. Thank you!

Source: Maria Johnson’s Personal Page for SHARE FUN WALK 2016

Fearing and lonely on the East Coast or some days I just really miss the benzos

Sometimes when I realize just how many fears I am currently fighting OR giving into on a daily basis it makes me feel almost physically ill.

There’s a lot of sucky scary things in my life right now but what’s worst is when I start feeling afraid of the good things.

WordPress for example.  I love the feeling of getting a good post done or at least what I feel like is a good one but then if I don’t get any response I feel afraid that I suck, that I’ll lose followers. That one of the few personal positive things I’ve had in the past few months will fizzle and die.

Just posting that makes me think people will think I’m uselessly vain and seeking undeserved validation.

Can a cripple get a happy medium?

Note: This post is long, rambly and clip-happy. Readers looking for a succinct well-written blog post may wish to search elsewhere in your reader.

At the beginning of “A Wrinkle in Time”, one of things Meg Murry’s family picks on her about is never having a happy medium. Of course, when they chastised her for not having one, they meant this:

happy medium
noun
1.
a course of action or condition that is between two extremes: Our climate is a happy medium between hot and cold.
2.
a satisfactory compromise between two things that are related in such a way that one increases as the other decreases: We need to find a happy medium between conserving land and developing property

 

Dictionary.reference.com

 

For Meg, her needed happy medium was in reference to her temperament. So of course, I was delighted at the literary pun of sorts when Meg goes  on her sci-fi journey and meets her:

So what does this happy medium have to do with the Happy Medium? That’s where the pun comes in: the Happy Medium lives on a planet where everything has been evened out to a medium gray, but she herself is a different kind of “medium,” the kind that works for the Psychic Friends Network. And she is indeed happy, though it seems she gets to be that way through pretending unhappy things don’t exist: as she says to Mrs. Whatsit, “Oh, why must you make me look at unpleasant things when there are so many delightful ones to see?” (5.84). Her cheerfulness is not that of a person who looks at the world straight-on and still finds cause to be optimistic, but of some who maintains a positive mood by sticking her fingers in her ears and singing “la la la” when anything upsetting comes up.

The Happy Medium’s power to show the kids the shadow of the Black Thing over Earth strengthens their will to fight. She also offers another kind of lesson, to Meg at least, that maintaining a happy medium, or a Happy Medium, at the cost of self-enforced ignorance is not a worthwhile goal

 

Shmoop.com

 

Delightful as I found this pun as a child, as a struggling disabled adult I am searching out the first sort of medium. Which is my verbose way of getting to the point of my post.

Being disabled by a chronic illness, I find that quite a few people, maybe not quite the majority, but enough to launch a coffee fueled sermon, react to my condition in one of two unsatisfactory aka enraging ways.

Either:

Or:

This  rant may make me come off as hypersensitive, impossible to please or ungrateful for what I do have going for me and I’m not trying to be any of those things. It’s difficult and to be honest it’s hard not to have mood swings about the whole thing.

I hate when people don’t recognize the extra effort that everyday life takes for me because they don’t understand the extent of my disease. Or jerkoffs who think that expressing impatience with my disability will suddenly cure me eg the guy who sees me waiting to cross the street with my walker, stops for me to cross, then starts loudly revving his engine when I am a quarter of the way there.

I also hate it when people who do acknowledge my handicap act like I deserve a Nobel Prize for showing up at one of my children’s events. Or that I don’t know what’s good for me when they offer help, I say no thank you , and they forcibly “help” anyway.

Long story long, I wish more people would listen to this guy and take his advice to heart.